Stuttering Penguin

Was sent this great article about Pittsburgh Penguin Bryan Rust who stutters.

After seemingly every home game — with occasional exceptions because of injuries — Rust will hold meetings with children who deal with a stutter (and a parent) in a hallway adjacent to the Penguins’ dressing room.

In addition to supplying tickets to the game, Rust poses for photos, autographs merchandise and above all else, just talks to the kids about their common trait.

“Obviously, something that’s close to my heart,” Rust said Jan. 25 at the team’s facility in Cranberry. “Something that’s really important to me and my family. Something that might get overlooked. … It’s something that I’ve gone through, and I’ve tried my best to go through that adversity and tried to get better. It’s something that for me was important because it gets overlooked.”

I am a Penguins fan, so this was great to read. I’m trying to get more articles and examples of celebrities and athletes who stutter – or, I should say, aren’t fluent – when they’re speaking on television. Please pass them along as you find them, and I can build up a separate page.

I think just seeing people who aren’t fluent on television is really important to young people who stutter and others going through this journey. We are too often surrounded by fast-paced fluent speech that we think we’re expected to emulate.

Allergies

Way back when in 2010, I took an allergy test. I was curious. I took the kind where you look at a list of foods, pick the ones that you usually eat more of, and then have little pricks on your back. Based on the size of the reaction, you can figure out what you’re most allergic to. What I remember the most is being allergic to … lots of things. Lots. Not only dander and pollen and trees, but also to soy. That showed the largest reaction.

I tell people this, and they ask me, well, what happens when you have soy?

I have no idea. I’ve been eating soy my entire life (indirectly, mostly – as we all know, it’s in pretty much everything). I have never had a full-blown allergic reaction to anything in my life.

I say all of this because this year I am going to try harder to eat better. I’ve been curious for a while if my allergies have anything to do with my speech. Does the soy affect how my vocal cords react? Or is it just hard wired in neurologically and that’s that? Do certain foods get me more amped up than others? I was reading through my About and FAQ pages recently on a cleanup. I talked about taking Pagoclone and feeling more relaxed. Would non-allergic foods make me feel more calm? Does it have to do with blood sugar? So many variables!

Disclaimer, of course – there’s no cure for stuttering. There’s working on Acceptance – the mental aspect. And then there’s the physical aspect – working on breathing, pacing, easy onsets. What if I can tweak more of the physical?

What’s also hard is that I spend pages and pages on this blog saying that Acceptance is the goal. Say what you want, sound however you want, and it’s fine. And it is. And I’m ok with it. But then the other half is still wanting to sound fluent, still chasing that high that follows fluent speech.

I think my excuse for this is going to be – what’s the harm? Why not treat my body a little better and see what happens. So this year I’m going to read more labels, try to avoid soy (and gluten, why not) and see what happens.

Apparently I talked about doing this in 2020 …

Plans for the year

Happy New Year! It’s been a good three months again since I’ve posted. Amazing how quickly the time goes by. This year is finally going to be different. I am going to do something I said I would rather not – subscriptions. I just think that with a paying audience my accountability will go way up. I’ve always had plenty of ideas but when I see the rather low numbers of readers, it’s hard to keep going.

Plan for this year will be to back to link roundups every two weeks. I will also start listening to stuttering podcasts and doing reviews/commentary on them. In addition to that I brainstormed a few dozen post ideas of things that have happened to me or what I’ve felt in the past few months and years.

The nice thing about writing about stuttering is that it’s not really time-critical. The message will likely reach someone who needs it at that moment. I go back to what the purpose of all of this ever was – writing to my younger self.

This year I am also going to make a stronger effort to watch my diet. Over the past few months I’ve been intermittent fasting here and there. I can casually report that it seems to be helping my speech. However, there are also other variables – more relaxed at work and home, not a ton of new stress, using my tools more consistently.

So, please join me, please comment, please follow along. This blog has been around one way or another for ten years, so I’d like to keep it going.

Changing Plans

I had a chance to travel to Canada a few days back. To Quebec. Where they speak French. I studied French in high school for almost all four years (that’s another story). I don’t speak French on a daily basis. But I know enough to get by, and I really enjoyed seeing all the signs in French. I had this plan in my head that when we “went around the room” I would introduce myself in French, say that I stutter (in French!) and then a few more things. It was going to be great. And impressive. And all that. I could take my advertising attitude and put it to good use in a foreign language.

This did not happen.

Most of the time what happens with introductions is that you slowly go around the room. People are settled and focused. They are listening. It’s early in the day, and you need to know who’s there. That’s what I was used to, and I thought it would be a similar environment.

Instead, the mood was very casual, a small group of people, and a feeling that we should just say our names and titles and that’s it. The leader of the discussion did this while sitting down, so I started to feel that a long intro wasn’t in the cards. My coworkers did a similar thing, no saying a full work background or anything.

I followed suit.

In English.

I genuinely didn’t feel like I was avoiding or being covert. I kept it short, and I didn’t say anything about stuttering. I was trying to adjust to the room. I think in some ways it was good – I don’t want to get too far with advertising where I believe it’s always the answer. I want to be tuned into what the group dynamic is and how I fit in. Will I be speaking a lot (not really)?

That being said, I still felt kind of meh about the whole thing. I had things prepared! I wanted to practice. Fortunately I got my chance the next day in the break room. I was able to speak to one of the attendees in French, and he appreciated it. Another coworker overheard this and said something to me about it later in the day – prompting more French speaking. So while I didn’t necessarily speak on my own terms or schedule, it did happen. I think being open to it and finding a time that was appropriate also helped me feel more comfortable. And it was a good reminder that sometimes plans change.

Come by, say hello

I’ve been a little more active on X (Twitter) lately. And I wanted to welcome those of you who are following me there. I’m there mainly to broadcast whenever I have an update on this blog. For me I tend to have longer things to say about stuttering, so I’ve found the blog is the best format.

Although I’ve said what the purpose of this blog is, I thought I’d reiterate a few things for people who are new.

I’ve had this going for several years, so there are tens of thousands of words written about what I’ve gone through with regards to stuttering. I’ve talked about my childhood, teenage years, high school, college, and working. Job changes, life changes. And there are still a lot more to come.

Mainly I’m doing this for my younger self – the stuff I would have liked to have known back when I was a kid struggling with stuttering, being covert, and not knowing what I could make out of my life. In the past year or two I’ve not written as much as I did earlier. I think it’s because I’m in a different place mentally. I’ve really come to accept stuttering. So I felt that I shouldn’t give it as much attention. However, I realized that even though I was going through that, many others may not be. Some people may be coming to this site for the first time. And be looking for help or answers or some perspective. Now I think I want to take this up again and keep it updated, keep it relevant, and keep the links interesting. 

I’ve found so many people on X who are SLPs. Many don’t say stuttering/stammering specifically, but I wanted to connect to let everybody know that if you do run into someone who stutters, this site can be a great resource for stories. Please like, share, say hello, and spread the word as much as you can, and I look forward to connecting with more people and helping them on their journey, no matter the pace. It really means a lot to me when you do send a small note – it lets me know that people are really listening and getting something out of all this. 

Small airplanes

I’m just going to try to get everybody caught up on what’s been happening in the past few years one post at a time. The time since the last post is only about two weeks, so I’d say I’m doing pretty good.

Anyway, I went on a business trip a few months ago, and one of the things that I love is flying. Not necessarily the way air travel is now, but the whole experience of getting onto an airplane and flying and having that sense of wonder. I’ve had this since I was a kid.

We live in Lancaster, PA, and there’s a small airport here. It’s got commercial service. It’s a single prop plane that used to fly to BWI, but now flies to Dulles, Pittsburgh, and other places. Well, I had to go to Buffalo for work, and I could have driven. Or … I could take the small prop plane down to Dulles and catch a connecting flight up to Buffalo. Since the times worked out and it was less than driving, I took it.

I love these planes. I love being able to see the ground as we fly, and what the pilots are up to. I love being able to smell the jet fuel as I walk on the tarmac. It’s just perfect.

So while going through security, I noticed that the [one] other person on my flight had the exact same carry-on that I did. A carry-on that I had bought about 15 years ago and had never seen in the wild. I didn’t have it on me, but I made a comment. “Oh, wow, I have that exact same bag.”

We made some small talk about how great the bag is (I’ve carried mine on hundreds of trips and beat it up pretty good on several overseas flights). I then gently transitioned to asking him where he was going – probably not just to DC. He said he was flying out west and going to a conference.

When we got on the plane we were able to keep chatting (it was the two of us and the two pilots …) across the small aisle. I learned that he graduated from the same high school as me and even had several of the same teachers. We had a good laugh about them. I don’t recall introducing myself, nor did I feel the need to. I think for me I’m a naturally curious person, so the questions come up quickly and then based on the answers, I just have more and more. There’s never a shortage.

I’m not sure if people find this annoying. I’m working on making sure I’m reading the room the right way and if they are giving signs that it’s time to shut up and enjoy the flight. I don’t think I stuttered too much when chatting with this guy, but I also didn’t let my stuttering stop me from initiating something in the first place. I’m starting to realize – what’s the worst that could happen? They could just acknowledge me and that’s it. Or we could have a lovely chat, and I could gain more confidence. And I could continue to put my stutter back in its place.

Cruising

What if you didn’t have to introduce yourself?

One of the most stressful things those of us who stutter do on a regular basis is introduce ourselves. Being a covert stutterer other words were easy to avoid. A substitution here, a rearrangement of a sentence or phrase there. But never your name. That’s all you have, and you’re supposed to know it and be able to say it instantly. (This also applies to the names of your children … something that I’ve also had the displeasure of finding out). 

I’ve learned that once my name is finally out, the rest of the conversation isn’t too bad. (Especially now since I advertise, so I don’t even have to avoid words or phrases anyway). But I remember quite distinctly how stuttering through my name would cloud the rest of the conversation. I wouldn’t speak as much, would do lots of mental gymnastics to make sure the rest of my words would smoothly come out.

A few weeks ago my wife and I took a cruise. This was just my second, and it was quite enjoyable. I wondered though, that for a person who stutters, is meeting people on a cruise somewhat ideal? I never once introduced myself. Just started talking. And others were the same – they didn’t introduce themselves.

Ok, let me break this down and exactly how that even happened – I know how intimidating it can be to just start a conversation from nothing with a stranger.

There are many places on the ship where people will gather and line up for something or another. A coffee, a drink, an excursion. And they have no place to go, and neither do you. There are excursions that can be done off the ship – so a place to start a conversation is asking if they’ve gone on an excursion. Or which one they are going to do. Or how often they’ve cruised. Or if they’ve been to any of the shows.

At the end of the day when people are gathered, they’re generally tired. So you can make a comment like, “long day of relaxing, huh?” And then they’ll laugh and tell you about how they spent the entire day off the ship doing fun things that they’d never done before. Many people also wear t-shirts and hats from back home – you can ask about their teams. It was interesting just how much people opened up and told you about themselves.

Lately for me speaking to others has been about practice. And habit-breaking. When I was a kid I always associated opening my mouth with stuttering and struggling. Now I want to make the association between opening my mouth and learning and listening. 

So very long

I’m not done with this site yet. Yes, it’s been 15 months, but I’m going to have news to share in the coming weeks. Basically along the lines of having made a long list of post ideas, then written those posts, then setting them to automatically post every week for a year. How about that! And of course it’ll cover what’s been happening the past year-plus including multiple job changes and landing a really sweet job.

So, please do stay tuned. Send me a note, write me an e-mail, say hello. Please let me know that I’m not the only one reading what I’m writing.

Acceptance – Tools and Techniques

Another installment in the Acceptance series. What I said during my talk:

I have accepted that there are tools and techniques to use when I feel like I’m having a bad day. That there are things that I can control. I take a deep breath before speaking. I speak more slowly. I prepare myself and rehearse what I need to say. I’ve accepted this because these are things that work for me, and I’ve seen people who are fluent do similar things before talking.

The thing about stuttering and how I feel about stuttering is that it’s … complicated. On the one hand I want people to accept me for the way that I sound and come across. And I’ve written about not being perfect. On the other hand, there are those days when I just want to be fluent. When I want to say what I want, exactly what I want, but not stumble or get stuck on my words.

It’s really a question of energy then. Do I want to spend my time trying to educate someone about stuttering and acceptance and patience, or do I want to spend energy on technique and breathing and preparation?

I think it’s still both for me. And that’s just where I am on my journey.

So I do use those tools and techniques. I use things that have worked before in the past, that are reliable and helpful. They help me reduce my overall stress when speaking. They allow me to speak on my own terms instead of being rushed. I’ve recently been changing the cadence of my speech as well, and that’s helped with fluency. I’m not sure how it’s coming across to others — or if they even notice — but it’s helping me in some ways.

Maybe in some ways these tools and techniques have made me a better speaker overall. There are people who don’t stutter at all who don’t work on their speaking. They fear public speaking and getting up in front of others. At least as someone who stutters I have these tools available and have used them frequently. So the fear of being in front of others is lessened, allowing me to focus on the content.

Let me know your thoughts. This one is tricky.

Started a new job!

Clearly I need to share more. I mean, I started a new job back in October and still haven’t written about it. I was at the food company for three plus years, but realized it was time to move on. I didn’t feel great about where the company was going, projects being cancelled or postponed, and overall capital being reduced. As we all have seen, the market is really good for finding a new job. I wasn’t looking too hard, but when a former colleague reached out to me, I ended up pursuing it.

So now I’m at a smaller engineering firm again. I started at a smaller engineering company when I was just out of college. And now I’m working for the same boss who I had out of college. A small world indeed. The part of it has helped me with my overall comfort, but I’m still having to go around and introduce myself to people. It’s been … ok. I think after three years at a company you get to know everybody who you need to know. So anybody new is really introducing themselves to you.

I was put on an assignment for the past few months at a client site, but that’s now ending. So I’m transitioning back to the office in Philly. I’ll talk about the client part in a later post. But for the past few days I’ve been going in. I got a new desk which was near other people. So instead of letting the awkwardness build up, I just dove right in and started introducing myself when people were around.

I didn’t advertise. Eh. I forced out my name and just got right into it. They didn’t say anything about it. Maybe this is a good thing? Maybe I need practice telling people well after the fact. I don’t know. My speech has been pretty good, but I’m still not fluent here and there. One lousy excuse is that my boss took me around to introduce me to a few people, and he said my name, not me. But I’ve been on my own for the past few days.

So yes, advertising is hard. And I’ve said before how much it has helped. Maybe for me it’s easier to do in a group instead of one on one. Which sounds pretty crazy.

Acceptance – Reactions

Next installment on Acceptance – here’s what I talked about with regards to reactions.

I have accepted that some people will not react to my stuttering in a positive way. This is because I know some people have their own problems. I can’t control that. When you cut someone else down, you’re saying more about yourself than you are to them. I have accepted myself, and if they cannot accept me, that’s not my problem.

Through tv and film, those of us who stutter have been made out to be the laughingstock. We struggle to say words, we wave our arms frantically, we make faces … all for a laugh. So when someone hears us stutter, they may be inclined to laugh at us. They don’t know, and I shouldn’t expect them to know. They probably don’t hear someone who stutters regularly. They may not have a friend who does. Their friend who stutters may sound completely different than us.

I know it seems that I’m giving them the benefit of the doubt, the allowance to be a jerk, to be disrespectful. And I guess I am. I’ve accepted that I can’t change years and years of tv and movies. I can only do it one interaction at a time. And I have done this. I’ve been laughed at, and then I rather firmly explain where I’m coming from and why what they’re saying is hurtful. I’m not in this to make myself feel better, but I want at least to educate them so that the next person isn’t humiliated. I know when I was younger being laughed at was devastating. I’d never wish that on anybody else.

I think where I’m coming from is that I don’t know anybody else’s background, and I shouldn’t expect them to know mine. But do I laugh at others when I first hear them talk or see what they look like? Well, no, I don’t do that. But that comes with maturity. To know that you’re supposed to listen for the content and not how the message is delivered. I think that’s the biggest problem today – people are just so quick to judge and give their opinion – on how something or someone stacks up against their expectation.

Acceptance – Still Communicate

Happy New Year, everybody. Hope your holidays were fun. And now look at me, still trying to make good on finishing out this series. Still talking about Acceptance. Here’s the next installment. This is what I talked about with regards to communicating.

I have accepted that I can still communicate when I am not fluent. When I sit in a meeting and raise my hand to speak, to bring up a point, people listen, and they listen no matter how long it takes the idea to come out. They are interested in the message, and not how it sounds. I have accepted this, and it’s because I have heard others speak. And how some speak slowly, some quickly, some with many hesitations. And of course I’ve heard my brothers and sisters who stutter as well.

For a long time I was silent. I didn’t want to say anything because it wasn’t going to be fluent. And if it wasn’t going to be fluent, then I thought it wasn’t going to be relevant. It wasn’t going to add to the conversation.

Over time what I noticed was that when I did say something and stumble over my words, people generally didn’t care. I would get the occasionally snicker, but the co-workers who I had who had been with me for a long time, didn’t care at all. I noticed that I was able to get my point across, and usually someone would comment that it was, in fact, a good point. Something valid. Something worth adding to the conversation.

When I moved overseas, the dynamic was different as well. My confidence went up exponentially during meetings. This was because there was a lot of respect for me and what I was bringing to the table with regards to people and project management. They wanted to hear how I had done things, and how we were going to move forward.

It’s always been easy to give up and just send an e-mail. Not pick up the phone or walk down the hall. But in a smaller office setting where I became very comfortable with my colleagues, in-person discussions became the norm. This allowed the exchange of ideas, developing solutions, and understanding where others were coming from. I had to then present in front of other leaders. Having gone through an idea so many times, I knew my message would be sound, and that always helped my delivery and ongoing confidence.

Of course age has helped as well. Nowadays I try to listen first and then ask questions. Listening allows me to understand. And then breathing in and out a few times … slowing myself down … allows me to form a response and think through clearly what I want to articulate. I know that I’m not in a hurry. I know I can go back and forth. I know my default isn’t to argue or judge. Just calm.

Acceptance – Not Perfect

Another installment regarding acceptance.

Here’s what I said in my talk regarding being perfect … or not.

I have accepted that I am not perfect. I will never be perfect. Not in how I speak, how I sound, how I do my job, as a husband, father, son and brother. I accept this because I have seen what I can accomplish without being perfect. And how much stress and energy I would need to be perfect. I know that nobody is perfect, and I would expect that grace from others. 

Let’s look at where this comes from, this idea of having to be perfect. At our core, when we are someone who stutters, we want to be fluent. That’s it. We want to sound like the people on tv. Movies. Friends. Bosses. Coworkers giving a presentation. They all say “oh, I hate public speaking” but yet there they are, up in front of others, being fluent. Not stumbling over words, not getting stuck on sounds.

So at a young age, we always see this. This fluency. It’s everywhere. And when we hear a stumble, a stutter, a hesitation, we are taught that it’s wrong. Abnormal. Not what we should sound like. The person is nervous. Trying to hide something. We are forced to then be perfect in the one thing that we physically cannot be. And that’s extremely stressful.

For me I started thinking about speaking as something equal to everything else that I do. It may not be, but this exercise helped me. I compared it with something like a written exam or a physical test. I don’t need to speak for those things, but they take some skill and talent and knowledge to do. And I can measure those things.

When I was growing up, I did well on written tests in school. Not always a hundred percent, but I got good grades. But a hundred percent is perfect. And I wasn’t perfect.

In gym I was overweight and slow. I finished last in the mile. I couldn’t do all the push-ups and sit-ups. I could play dodgeball, I suppose. But I wasn’t exactly making varsity for anything. So I wasn’t perfect. But I tried hard, didn’t complain, and got a decent grade in gym. Also not perfect.

As I reflected on these things, I realized that not being perfect didn’t stop me from moving forward in life, going to college, getting a job, making friends and having a family. People didn’t ask me about my grades before befriending me. Grad school wanted good grades, but not perfect. And they didn’t care about my physical prowess.

Once I applied this all to my speech, I was able to accept myself more. I understood that my speech will never sound like a tv commentator or movie star. That I will have bad days and great days. But I can still accomplish my goals and feel good as a person for trying and working.

Acceptance – No Cure

I wanted to expand on a few topics regarding acceptance, and this is the first of eight. I gave a talk at TISA a few weeks back, and I was able to talk about these a little bit. Now that I’ve had more time to reflect, here’s what I hope will be helpful with regards to acceptance and what you can do with regards to how you think about stuttering.

Here’s what I said for the talk:

I have accepted that there is no cure for stuttering. The physical act of stuttering. I have come to terms with the fact that there may never be a medical breakthrough to cure stuttering. To fix that disconnect between our thoughts and our mouth. I accept this because of the simple reality of pharmaceutical companies. They will make drugs for what impacts the most number of people. We are not dying because we stutter, and our numbers are relatively small. We will still live. So it’s not a focus, and I can accept that. I understand the business of it.

When I was younger, I certainly held out hope that they’d come up with some kind of cure. Some pill or treatment for stuttering. You’d just go and do it, and the next day, boom, fluent as a tv commentator. As the years went on, and I learned more about how the world works, I realized that this was not going to happen. I also realized that there are many out there who are keen to take advantage of those in need. There are a lot of so-called cures and treatments out there. Some are more effective than others. I’ve come to realize that there’s a standard for treatment — going through a rigorous process, doing studies, seeing results. And that for the fly-by-night stuff, it simply isn’t there.

A “cure” to me means a full solution, full stop. Not something halfway that works half the time. I can do that. I can relax, I can breathe, I can be prepared. I can do none of those things and have a good day of being fluent. I can do all of those things and have a bad day and barely be able to get out a word.

Once the studies are done and the speech therapists of the world tell us there’s a cure, then I’ll be happy to get on board. But as I said in the first paragraph, it’s probably not just going to be a therapy thing, it’ll be a medical breakthrough. And the likelihood of that is very small given where we are in line with regards to other ills of the world.

So for me I choose not to spend any energy on hoping and dreaming for this cure. I’d rather use that to get myself in a better mental state of acceptance.

Expectations met

Well, just as I thought, I didn’t follow up and expand further on the post below. But I wanted to get on here though to say Happy Thanksgiving to all my American friends, and I hope your stuttering is going well during the holiday season.

I have had a chance to think about hobbies and how I want to spend the extra hours of my week. After considering the impact on family time and work time, I think in 2022 I want to renew my interest in this site.

So what I’m looking for is encouragement and accountability from you, dear reader. I’m on twitter occasionally with this blog, so if you follow me on there, please send me a little something to know you’re waiting for the next post. That should make sure I keep things going. I thought I could stay motivated, but there are so many other distractions these days.

One thing I have done to help myself is get off of facebook. I know there’s a growing stuttering community on there, so I’m thinking about going back just for that. But for now I’m no longer spending time scrolling through.

Talk to you again soon.

Acceptance

I was asked by The Indian Stammering Association, TISA, to give a talk about acceptance and stuttering. I put down a few hundred words and had some specific ideas about stuttering and acceptance. And now, given that National Stuttering Awareness Day is only three weeks away, I thought I’d share a few bullet points and then expand on them as the days go on.

(Keep in mind that I’ve promised things before during the month of October, and I’ve not done them. Hopefully this will be very different since I’ve got a lot of the notes down, and I’m off next week as I transition to a new job. Which, of course, is a whole other discussion and series (hopefully, again) of posts.)

So here are the eight things that I said during the talk that I’ve accepted. I’m sure over the next few months I’ll realize a few more, consolidate some of these, and then have a new list. But until then, here we go:

  • I have accepted that there is no cure for stuttering.
  • I have accepted that I am not perfect.
  • I have accepted that I can still communicate when I am not fluent.
  • I have accepted that stuttering is unpredictable.
  • I have accepted that there are tools and techniques to use when I feel like I’m having a bad day.
  • I have accepted that some people will not react to my stuttering in a positive way.
  • I have accepted that I do not know what others are thinking, and that they may not know what I am thinking.
  • Lastly, I have accepted that stuttering is not all of who I am.

Over the next few days I’ll expand on each of these ideas. What they mean to me, and the work I put in to get to this point of acceptance.

School Starts

I’ve not been thinking about my stuttering too much lately. Summer has been fun. Lots of time at the beach with family, and a few trips when and where possible. I knew it would go by fast, and it did. Stuttering-wise, not a lot stood out. Maybe because we were still sort of isolating and not talking to too many new folks.

Well, of course that had to end. School has started for the kids. Which means strolling on down to the bus stop with the kids in the morning and standing around until the bus shows up. I’ve not met all my neighbors.

On the first day my wife and I went down and saw a couple who live three houses down. My wife introduced herself to the mother, and I … did not. I just wasn’t feeling it. There was enough other noise and whatnot happening with the kids that maybe it wasn’t noticeable. Maybe I thought she’d introduce me as well? I don’t know. What I do know is that even though I’m more comfortable with my stutter than ever before, I still have days where I don’t want to talk, and where I don’t want to hear myself stutter.

Of course I had to make up for that. Because I was feeling bad inside about it. I get on this blog and tell people it’ll be ok, and it’s ok to stutter, and now here I am not even opening my mouth.

This morning another stroll down to the bus stop, and a neighbor who I hadn’t talked to. My wife introduced herself. I jumped in after, stuttering really hard on my first name. Eyes closed, starting, stopping, starting, stopping, breathing all out of whack. Ugh. Finally got it out.

He stood there, patiently waiting.

When he heard my name, all he asked was, “Rehan with an R-E, or an R-A?”

I said “R-E.”

He replied that he was going to a wedding this weekend for a friend who was named Rayhan.

And that was it. I got my name out. I learned his name. We made a connection. Life didn’t end. My brain got back on board with introducing myself and not freaking out about how things may turn out.

Office chit chat

During Covid, I spent all my time at home working. Call after call, meeting after meeting. I rarely made any kind of small talk unless it was the two minutes before everybody else joined.

I’ve been going back into the office lately (well, the plant) and it’s been … different. I still keep booking meetings hour after hour, so unless there’s something that ends early, I’m still busy all day. But during those times when I have had to just talk to people, I’ve enjoyed it. A lot.

I am fortunate to have a short commute to my home plant, so staying at home for work didn’t really make an impact on that. But being able to see people in person and practice my speech has been really good. I think the confidence I gained from all of those calls is carrying over nicely to the “real” world.

I am curious how others have been faring in all of this. Do you prefer to be at home and talk to people on your own terms, or do you miss when there were conversational possibilities all day?

I know for me a few years ago I would dread the office talk to some extent. It was exhausting. Trying to stay fluent, trying to stay competent, interesting, whatever. Now it seems there’s more to talk about, more to catch up on. I wonder if it’ll fade away again when we’re all back for a few months?

Surprise Stutter

It’s been a while now since I thought a lot about stuttering. And I think it’s been even longer that I’ve noticed it in my speech. I’d say my fluency has been relatively high lately. To the point where a casual observer would say I don’t stutter. I’m not avoiding, I’m not staying quiet, I’m just feeling good, and that’s helping with my confidence and thus my speech.

I’m sure I am stuttering a little bit here and there. Stumbling on words, but now it doesn’t sound any different than what my fluent friends put forth.

So the other day I was on a call for work, and I got stuck. Hard. And had to really stutter through it. It totally caught me off guard. I’m past the point of dwelling on these things for very long, but wow, it was pretty jarring. In my mind I hadn’t been stuttering for weeks, and here I was again, reminded that this will never go away.

I don’t think it was anything specific with the content or the environment. I think, as we all know, it just … happens. When it happens. We don’t get to decide.

What I wanted to think more about is why have I felt so good lately? I think it’s definitely getting into a nice groove at work, spending a lot more time with family (I am working from home most of the week) and having the summer with my family to look forward to. Finances are sound, and there aren’t any external worries weighing down on me.

Now I need to work on keeping this going. It feels good. It sounds good. It builds and builds. Yes, there are minor road bumps, but it’s pretty great. I’m wondering though as things open up, what will it be like to interact with others more. People who I haven’t seen in months. New neighbors (I moved into this house at the start of the lockdowns). Making small talk. Giving life updates on the past 12 months in a few minutes without sounding boring or blathering.

Terrible at goals

Well, I had fun reading through this again:

2020 Goals in Detail

That’s right — I set a bunch of goals for 2020, and … didn’t reach many of them.

Let’s see how badly I missed — the fact that I was supposed to do a quarterly check-in not withstanding …

  1. Reduce body fat by 7% – at one point, I think I had this done. I joined an online fitness program, and it really helped me for about 4 months. Then when I got married in October, that was it. I didn’t feel like I could focus on weight loss (because I needed another physical goal) since Covid was preventing me from really seeing that far out. I wanted to get in shape for something like a half marathon or long bike ride, but then didn’t have the ambition to find something this coming summer.
  2. Read 6 fiction and 6 nonfiction books – I read some this year, but not as much as I’d like. I continued to read a lot online (newspapers) and some magazines as well. I continue to buy new and used books, so this goal will just roll over.
  3. 25 blog posts – 22! That’s the worst. And the one I could have just knocked out in six months. Roll this one over again.
  4. 30,000 meters of rowing per month – well, I set this before joining Future in mid-June. But up until that point the workouts were pretty hit and miss. This year will be tough again. I need to find a decent place to work out (the garage is cold during the winter!) and the basement is stuffed with other things.
  5. Run a November 5k in under 30 minutes – they were all cancelled! I think this one was out of my control. Although I could have just done it on the treadmill. What fun would that be, though?
  6. Keep library fines to under $30 annually – I managed to miss this goal before the libraries closed, and then again after they opened up. I’m the worst.
  7. Reduce ten items per month from the house – maybe? I know I haven’t added too many things, but whether or not I tossed 120 items … probably not.

So what about this year? I think I need to keep them simple again. And focus on adding to this blog and any other writing endeavors that I have. Writing doesn’t cost me anything, and I can do it during slow moments during the day. I have a long list of topics about stuttering and not stuttering that I want to get to.

What about you? What non-stuttering goals did you have for this past year, and what got done or didn’t?

The end of 2020

There’s been so much written about this year. It was a Dumpster fire, it was terrible, let’s move on. I suppose I would have a lot to say about it, but I wanted to focus on my stuttering. Since this is supposed to be a stuttering blog. And how stuttering affected me this year, and how I was able to navigate this pandemic because of it.

I can’t recall making a huge stuttering mess out of anything this year. There’s not a time that I can look back and say, wow, I had a really hard time, and that was really embarrassing. That’s got as much to do with my attitude toward stuttering as using my techniques more and more.

I didn’t finish a lot of things on this blog. I was going to measure some goals, and that lasted a few months. I’m not even sure where they are right now. I know I lost some weight. I gained some back. I got rid of some possessions, and I added many more. I moved out of my apartment, bought a new house, and got married again. We traveled very little, posted on social media a lot, and read when I could.

Work consumed me a lot more than I thought it would. Working at a food company means having to keep the plants open and safe. When you’re doing projects, that means making sure the contractors coming in are following the rules. It also means deciding what’s really important for the plant and what can wait. And the goalposts moved every few days as areas became more and less restrictive.

I definitely talked a lot more this year than any other year of my life. Of that I am certain. At one point I was participating in 30 or more conference calls per week. And in most of them I had to either lead or heavily contribute. More than anything, that intensity helped me build up acceptance of my stuttering. I literally didn’t have time to dwell on a word that was getting stuck.

So what’s next for 2021? I think more writing. Here and a newsletter I’m thinking about. I’m not sure if a stuttering newsletter is necessarily in the cards, but I’d consider it. I wanted to do something for young engineers — passing on all the fun things I’ve learned over the years. I think there is a lot out there about software engineering, but not a ton about field engineering. What’s done out in factories. What that life is actually like, the kinds of things you should know, and what mistakes I made — so others don’t have to repeat them.

I know following this blog hasn’t always been easy with the sporadic publishing schedule, but I do appreciate everybody who has read in the last year, the last half-decade. I see the numbers (they are small) but hopefully someone out there is getting something positive out of this.

Secrets to Fulfilled Life, Part 3

Another post about the Secrets to a Fulfilled Life … inspired by this article from Oliver Burkeman.

One of his secrets is simply:

The capacity to tolerate minor discomfort is a superpower.

He says, “It’s shocking to realise how readily we set aside even our greatest ambitions in life, merely to avoid easily tolerable levels of unpleasantness.”

My, my. Doesn’t that just sum up stuttering and being covert perfectly? I think back occasionally to a lot of things I wish I had done. Or decisions I had made solely based on stuttering. It’s impacted so many formative years for me. And why? Because I didn’t want to be laughed at, made uncomfortable. Or didn’t want to feel so small.

Things now are very different. Advertising my stutter. Putting my disfluency out there all the time — conference calls, meetings, inquiries at Home Depot. And what have I learned?

As he puts it, “You already know it won’t kill you to endure the mild agitation of getting back to work on an important creative project; initiating a difficult conversation with a colleague; asking someone out; or checking your bank balance – but you can waste years in avoidance nonetheless.”

So yes, I will continue to quote his entire paragraph on the matter. He then adds (which, again, is something I’ve been able to do over many, many years…)

It’s possible, instead, to make a game of gradually increasing your capacity for discomfort, like weight training at the gym. When you expect that an action will be accompanied by feelings of irritability, anxiety or boredom, it’s usually possible to let that feeling arise and fade, while doing the action anyway. The rewards come so quickly, in terms of what you’ll accomplish, that it soon becomes the more appealing way to live.

I really wish I had read this while a teenager, but I also wish I had someone to explain it to me simply. I probably wouldn’t have been able to make the connection to stuttering like I do so easily now. I think it would have been very helpful during my formative years to have a mentor or coach to help me with my stuttering journey. Someone who could ask and probe. Suggest a new way, a slightly uncomfortable way, but a way that would yield a lot of results.

The way my life is now is certainly more appealing. Even comparing it to 5 or 10 years ago. I no longer measure in weeks and months. I’m old enough now to realize change takes a lot longer than that.

Secrets to Fulfilled Life, Part 2

I wrote previously about Oliver Burkeman’s piece in the Guardian. Today I wanted to expand on another point he’s made:

When stumped by a life choice, choose “enlargement” over happiness.

The idea, according to Burkeman, is that we don’t ultimately know what will make us happy — so we should be choosing the approach that favor growth. In my mind, with growth comes new opportunities, and then maybe one among those will provide us with happiness.

About ten years ago, I was two years into a job with Jacobs Engineering in Omaha, NE. By this time I had gotten to know everybody in the office, at our client’s corporate headquarters, and at several plants. My speech was steady and fine. I wasn’t overly confident about just throwing myself out there, but I was less worried about what others thought.

An opportunity then came up to go overseas and work for Jacobs in Saudi.

What would this mean? The stress of packing up our house and moving. Moving to a foreign country. New laws, new politics. New coworkers, a client relationship that wasn’t very old.

Basically leaving all the comforts of home for a lot of unknowns.

It would have been so easy to stay at home, but I knew in speaking with my boss that I needed international experience to move up in the company. And I had that drive to do so.

So I chose growth.

I went into that adventure with the mindset of, “ok, I’m going to make this work.” And it did. Very well. I knew ahead of time that my speech might be rough at the beginning. It was. But then it smoothed out considerably, and I started feeling more confident about what I was doing, and why I was there. I started writing more, and cranked out this blog. I went to the NSA conference.

The chance to go overseas could have been seen as “maybe” happiness. Maybe things will work out. Maybe I’ll enjoy the sun and the sand. If I had made the decision purely based on potential happiness, I would not have gone. But instead I looked around as often as I could while there and took stock of a lot more of the world and what it had to offer.

Life changed a lot in those 5.5 years, but there was certainly no shortage of opportunities.

Secrets to Fulfilled Life, Part 1

I recently read this great article from Oliver Burkeman regarding secrets to a fulfilled life. I wanted to comment on each item over the next few days and how I think they relate to what I’ve experienced with regards to stuttering.

My thoughts have some overlap between them, but here we go … these aren’t in any particular order from the original article.

The advice you don’t want to hear is usually the advice you need.

He goes on to say about this, “so the advice that could really help is likely to make you uncomfortable.”

When I think back to my younger years in school, what would have made me very, very, very uncomfortable would have been having someone say, “you should call this person up on the phone, just to try to talk to them.”

Or, “you should go up to that person and try to have a conversation.”

Or, “you should attend an NSA conference and be surrounded by other people who stutter.”

Or … so many things.

But nobody ever did. Since I was covert, and since I didn’t like to talk about my stuttering, my friends never brought it up. So they could never challenge me to get out of my comfort zone.

He goes on to say:

“One good question to ask is what kind of practices strike you as intolerably cheesy or self-indulgent: gratitude journals, mindfulness meditation, seeing a therapist? That might mean they are worth pursuing.”

I spent a few years journaling about stuttering. I’d put down my thoughts from when I first started stuttering through college. While I was doing that, I realized a lot of things about myself, my reactions, and what motivated a lot of my decisions. Nobody specifically asked me to try it, but I certainly wish someone would have done it earlier.

Through all that writing, I had plenty of things to blog about here which went really well. And then all that introspection finally gave me the strength to sign up for my first NSA Conference. And that changed everything for me.

So I would strongly support what Burkeman suggested — getting advice you need is definitely uncomfortable. But it’s also completely worth it to help with your stuttering journey.

No more nightmares

The other day I took my daughter to the pediatrician for her annual checkup. (All is good). During the visit I asked about something specific, and about getting a referral. So before leaving, I was handed a paper, the referral. I asked the person at the front desk what I should do with it (I don’t do this often). So she said to call the number on the top, and they’d be able to help me. Seems reasonable.

The next day I called the number and asked about the specific service I needed. There was some confusion. And then some transferring. And then a bit more confusion. Then I was told that I should call the doctor’s office back, and that they should make the referral call. So I called the doctor’s office back, and … nobody picked up. So I left a message with all the details. After a bit, they called me back and explained to me how what I was told at the front desk was wrong, that they’d handle all the calls, and then call me once it’s all done.

Which made more sense.

Basically I made a bunch of phone calls that I didn’t have to. And I gave a bunch of information that I stuttered hard on that I didn’t have to. And I was a bit confused which I also didn’t have to be.

That evening I told the story to my wife, and she said, “they made you call which they didn’t know was your worst nightmare.”

And I thought about this for a while afterward. (My wife knows all about my stuttering and the journey I’ve been on. She knows my feelings toward the phone and its challenges. She’s been very supportive throughout.)

I thought about how a few years ago, yes, it was a nightmare. Calling on the phone was something I would completely avoid at all costs. I’d put things off due to having to call. I’d e-mail or text or whatever else.

When I had to make the calls to the doctor, I knew I’d stutter. Maybe on my name, my date of birth, whatever. I always do. But I’m finally well past the point that it bothers me. Or brings me down before and after the call. Right now it’s just an annoyance more than anything. I want to get on with the call, get on with giving information, and get back to doing what I want to do.

Years ago after calls like that I’d be mentally wiped out. I’d feel like garbage, and get really down on myself. I’d sink back into a hole and avoid the phone all over again. I’d let it cloud my thoughts for hours and hours.

These days I make calls when I need to make calls. I’ll stutter. I sure will. Sometimes I advertise it, sometimes I don’t.

But the nightmares are over.

What’s not stuttering

When I was growing up, one of the hardest things to come to terms with regarding my stutter was watching fluent people just initiate random conversations. I think back to things like car shows or garage sales or other places where you’re walking among strangers. And as you walk and see something that interests you, you find the person who’s probably the owner, and just blurt out your comment.

Sees a right-hand-drive BMW

“Wow, that’s nice, how’d you get that car in this country?”

No thanks.

My approach was to look at something, appreciate it, and then if someone came up to me, I’d engage. Lightly.

But just putting it out there? Are you nuts? I’d stutter! Of course I would. And in the off chance that I didn’t, I’d say something in that exact moment that someone else would — and then be faced with having to repeat myself. Or maybe I’d not say something loudly enough. Then be asked to repeat myself. Or maybe the stranger would hear me, would answer back, and then introduce themselves. Say my name to a stranger? Nope!

So the world of pure spontaneous utterances was always off limits to me. Oh, but how I wished I could. I wanted to engage. I wanted to talk, I wanted to find out more. But the cost was too high.

When I lived in Saudi, I had a friend who would talk to every stranger he saw. I’m only slightly exaggerating. Yes, it was his personality (as a business owner) but I was always in awe of how easy it was for him. How he just …made small talk wherever he went.

I’ve been getting better at this though. The amount of time it takes to get the nerve up to say something is getting shorter for sure.

With all that said, I’ve been thinking about getting a new car. A Jeep. This has been fun to research, of course. And my Instagram-browsing has lead me down the path of larger wheels and lift kits. A few days ago I was driving home, with my windows down, the sunroof open, and I saw a pair of black lifted Jeeps up ahead.

I liked the way that they looked. Larger wheels and tires. Lifted. Enjoying all the things that Jeep pushes in their marketing.

They stopped at the light, going straight. I was going left. I stopped alongside one of them, shoved my stuttering aside, leaned way over (I have a very low car) and shouted out —

“Are those thhhhhrty ffffffffives, or thirty sevens?”

“They’re thirty seven.”

“And is that a two inch lift, or-“

“It’s a three inch.”

“Thanks!”

So yes, I physically stuttered a little. But the huge wins were:

  1. Asking exactly what I wanted to
  2. Being completely spontaneous

I’m going to continue to focus on my wins, not losses. And by adding them here, I hope you can all change your mindset as well to think about how over many, many months you can also slowly go from being afraid to fearlessly putting yourself out there.

More and more normal

So I’m sure a lot of you saw this clip at the US Democratic National Convention.

As someone who has been stuttering for many decades, this is quite incredible to me. For those who don’t stutter, let help explain this.

When you’re a young person who stutters and don’t have anybody to look up to, you’re going to spend your early years in your own world. That means avoiding, changing out words, making excuses, and not living a full life. You’re not going to make decisions based on what’s best for your life and your future — you’re going to make them based on what you can say, right now, and what you’re comfortable saying. It’s extraordinarily restrictive.

By having Biden come out and help this young man, he’s normalizing what millions of us have been hiding for so long. Yes, there will be people who still make fun of us. Who don’t understand. Who interrupt us. Who talk over us. But history will soon forget them as our voices get louder and louder.

I never had anybody when I was younger to look up to for stuttering. Nobody in a position of leadership or power who normalized stuttering. It’s taken me many, many years to get to where I am now. I advertise my stuttering whenever I can. It’s more and more. And by doing that in front of strangers, I hope that I can normalize it for them. To let people know that I am not the mechanics of my voice, but rather the content of my speech.

I hope that in a few years the media checks back in with Brayden to see how he’s getting on. For almost all of us, there is no “overcoming” of the stuttering, but there is acceptance of who we really are. I think having more people who are openly stuttering on tv will continue to normalize all of us, and allow us to seek self-acceptance instead of banging our heads against the walls of absolute fluency.

Stuttering and Shaking

I was out for a walk the other night with my partner, and we saw some neighbors heading our way. I didn’t know them, but they were nice enough to stop and say hello. They then asked about us — being new to the neighborhood and all that.

And then he approached me, wanting to shake my hand.

Are we doing this? I don’t think we’re doing this still.

But I wanted to be friendly! We’re neighbors! Having a little chat.

At the same time of the handshake approach, he introduced himself, and I had to say my name.

I honestly don’t recall if I shook his hand or not. Because my eyes were closed, and I was trying really hard to say my name. A lot harder than I should have, yes. It took me a few tries, and I got stuck, and I didn’t say anything for a little bit, and then dragged out the r, and then … who knows what else. You know how it is.

I finally said my name, and then retreated back a step. The conversation went from there (no mention of the stutter, nor did I bother advertising). Sometimes, well, sometimes it doesn’t feel right in the moment.

So we chatted for a while and then went our separate ways. I didn’t think about it much after that other than making a note that it was a notable stutter in recent memory. I’m still stuttering obviously, but with COVID and everything else, there aren’t as many in-person introductoins to worry about.

I think years ago I would have beat myself up over it and felt bad about it for hours afterward. I got over this within minutes. I think the next time I see these people I may bring it up. And my feeling to bring it up isn’t so much about me and my situation. I’ve learned that generally speaking, people don’t know about us. About stuttering. So if I can education another couple about it — that it’s just who I am and will always be — that should be the goal.

Your name or your question

I moved into a new house a few months back, and have been slowly doing projects here and there. Of course that means a lot of trips to the big box home improvement stores. During COVID, of course, it’s a little easier — you can basically fill your shopping cart from the comfort of your couch and then go to the store and pick it all up.

One of the options for pickup has been to park your car and then wait while they bring your stuff.

The other option is to go inside and stand in line and wait for your stuff.

And what might be the problems with these if you’re someone who stutters? Oh yeah, you usually have to say your name — first or last. There’s the off chance that they may just ask you for your order number, but hey, it’s still a bunch of numbers and letters that you’re going to be put on the spot to read.

So I ask — what’s better? This system, or our stuttering favorite workaround of meandering the aisles for an hour since we sure as heck ain’t gonna ask someone for help?

As someone who’s come to accept my stuttering, I’m fine with the new way. I actually like it a lot more. I’m focused on the big picture here — staying away from people, spending the least amount of time in the store, and getting exactly what I’ve already spent some time scrolling and trying to find.

I think even if it was a few years ago what I would have done is just shown the clerk my phone with the order number on it. The information they need is there, and they usually ask for it anyway. I could have avoided giving a name if I really had to.

But this way does make me basically confront my biggest challenge — saying my name in public — in exchange for convenience, which is always fun to try.

Free Ice

A few weeks ago we had a chance to finally get away for a few days. We stayed at a house near the beach and decided to have groceries delivered. Our week would be house, beach, and nothing more. The kids were on board. I wanted to keep doing my part as far as the pandemic was concerned.

So I’m in the parking lot at the rental house, and another gentlemen is loading up his car. I stayed a few feet back, and then said hello. We struck up a conversation about where they were visiting from, what they’d done while down at the beach, and how it’s nice to get away. Small talk.

As you can imagine, small talk isn’t something that comes easy for someone who stutters. I am always, always, always worried about the next thing to say, the right body language to put forth, intonation, a laugh here, a smile there, and to come across as … normal.

I definitely feel like I’m getting better at it the more that I do it.

After our discussion, I went back into the house for a bit. I then had to go back outside to grab something out of the car. The same guy was there, and he asked if I’d like a bag of ice since they were leaving and obviously wouldn’t need it. Of course I would — we have a bunch of kids who are pretty hot and like cold drinks!

I realized that this is how it’s supposed to be — and how it is for many, many people. And a lot of what I missed growing up being afraid to talk to people randomly. Random acts of kindness. Serendipities. Offers of help or goods. Or maybe I could help or give directions or advice.

I didn’t ask for the ice. I didn’t ask for anything. Just being myself was enough. Not being afraid of my stuttering and stumbling through a small conversation. Every time something like this happens I do like to stop and write it down. And then go back and look at all of those times when being someone who stutters didn’t have any kind of negative impact.